A Dementia Voice
A website dedicated to giving people diagnosed with dementia a friendly space to express themselves freely, make new contacts, and tell their own story. It is based around the blogs – or diaries – of people with dementia. A Dementia Voice is hosted by Dementia Friendly Communities, a new social enterprise based in Sutherland.
Scotland’s leading dementia charity. Alzheimer Scotland provide services and campaign actively to help people with dementia and their families and carers. A website for people with dementia, carers, family members, professionals, policy-makers, students and anyone who wants to know more. Alzheimer Scotland provides a wide range of specialist services for people with dementia and their carers. We offer personalised support services, community activities, information and advice, at every stage of the dementia journey.
Alzheimer Society of Ireland
The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. In April the very first working group of people with dementia in Ireland was established by the Alzheimer Society of Ireland. The purpose of the working group is to explore ways to promote and encourage the direct involvement of people with dementia in its work and to ensure that the voice of people with dementia influences the public policy that impacts on their lives.
Alzheimer Europe is a non-profit organisation which aims to improve the care and treatment of Alzheimer patients through intensified collaboration between its member associations. Alzheimer Europe counts 34 member organisations from around Europe. They are governed by our Board, whose members have a personal and/or professional interest in dementia.
Alzheimer’s Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.
Dementia Engagement and Empowerment Project
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try and change services and policies that affect the lives of people with dementia.
Website which has detailed access information to thousands of venues across the UK and the Republic of Ireland: shops, pubs, restaurants, cinemas, theatres, railway stations, hotels, universities, hospitals and more
DREAM (Dementia Research Education Advocacy in Motion)
Dementia Research Education Advocacy in Motion (D.R.E.A.M.) is a national non profit /charitable movement run by people with Dementia for people with Dementia. It provides a forum to support each other and together speak with an independent voice to campaign to improve services in Ireland and to improve attitudes towards people with dementia.
EWGPWD (European Working Group of People with Dementia)
The European Working Group of People with Dementia – EWGPWD – is composed of people with dementia. They work to ensure that the activities, projects and meetings of Alzheimer Europe duly reflect the priorities and views of people with dementia. The group operates independently, with its own Board and agenda of activities. The Chairperson of the EWGPWD also sits on the Board of Alzheimer Europe.
Innovations in Dementia
Innovations in Dementia CIC is managed by three Co-directors, Rachael Litherland, Steve Milton and Nada Savitch, who combine many years experience of work in the dementia field. They work closely with advisers who have dementia. They all passionately believe in the human rights and potential of people with dementia and are committed to practically demonstrating how a more positive approach can work in practice. Rachael, Steve and Nada have experience in user involvement, accessibility, training, research and information.
Dr Maggie Ellis
Website of Dr Maggie Ellis, the newly appointed Fellow in Dementia Care at the School of Psychology and Neuroscience, University of St Andrews. Dr Maggie is involved in developing her own teaching, training and consultancy in dementia care and offers bespoke training in dementia care for professional care givers and family members. Dr Maggie worked with our late Vice Chair Brian Malone on her COBALT research project.
Lesbian Gay Bisexual and Transgender (LGBT) AGE
LGBT Age is a project run by LGBT Health and Wellbeing for lesbian, gay, bisexual and transgender (LGBT) people aged 50 and over in Greater Glasgow, Edinburgh and the Lothians. The project aims to promote health and wellbeing and create social opportunities. It offers a befriending service, a social programme and information sessions.
NDCAN (National Dementia Carers Action Network)
The National Dementia Carers Action Network (NDCAN) are a national campaigning group that aims to represent and raise awareness of the particular challenges encountered by carers of people with dementia. Members have personal experience of caring for a person with dementia.
On our Radar – Dementia Diaries
Our members have taken part in Dementia Diaries – a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the day-to-day lives of people living with dementia, with the aim of prompting a richer dialogue about the varied forms of the condition.
Scottish Dementia Clinical Research Network
Promoting Clinical Research in Dementia across Scotland, increasing the number of people with dementia and carers in clinical studies in Scotland. We also want more patients and members of the public involved in the network.
Young Dementia UK
Young Dementia UK is a charitable company based in Oxfordshire. The charity comprises a dedicated, knowledgeable, lively team of trustees and staff, and inspirational, amazing members whose lives have been changed by young onset dementia.